Welcome to My Page
My name Toya,
I was born in Cincinnati, Ohio and raised there for a short period of time. I was officially diagnosed with an ugly illness called Systemic Lupus Erythematosus in 1995. I was only the tender age of 9 years old at the time. Shortly after my diagnosis I moved to California. When I first moved to California my diagnosis was changed to MCTD (mixed connective tissue disease) by my Pediatric Rheumatoligist. Since my first diagnosis, I have discovered that I have the factor V Leiden mutation, pulmonary embolism, ITP (idiopathic thrombocytopenia purpura), anemia, arthritis, immunosupression, subacute cutaneous lupus (Discoid lupus), hypertension, Raynauds phenomenon, membranous lupus nephritis, fibromyalgia, complex migraine which goes hand in hand with the most recent encephalopathy. This illness comes with a line of overlapping illnesses and as time passes, more things occur. I'm at the point where I'm just trying to balance it all. My life has been extremely challenging since my time as a young girl. But I’ve managed to make the best of it. This is a view of my circumstance and life experience. Each person with lupus is different with different experiences.
Living with lupus has been one of the most struggling experiences of my life. I feel as though my life was stolen from me. I battle every day in hopes of one day finding a cure! I used to be so embarrassed about my condition because I felt as though many would judge me or misunderstand me. Now I'm very vocal about it because I know the benefits of raising awareness. I write books to reveal more intimate moments of my life and how I feel in a way of which I'm hoping that I could be of assistance to someone else.
I appreciate you for taking the time to read my story! Check out the rest of the website and contact me for questions, support, feedback or any concerns. Let's stand together and continue to raise awareness Take Care and Stay Blessed!
I was born in Cincinnati, Ohio and raised there for a short period of time. I was officially diagnosed with an ugly illness called Systemic Lupus Erythematosus in 1995. I was only the tender age of 9 years old at the time. Shortly after my diagnosis I moved to California. When I first moved to California my diagnosis was changed to MCTD (mixed connective tissue disease) by my Pediatric Rheumatoligist. Since my first diagnosis, I have discovered that I have the factor V Leiden mutation, pulmonary embolism, ITP (idiopathic thrombocytopenia purpura), anemia, arthritis, immunosupression, subacute cutaneous lupus (Discoid lupus), hypertension, Raynauds phenomenon, membranous lupus nephritis, fibromyalgia, complex migraine which goes hand in hand with the most recent encephalopathy. This illness comes with a line of overlapping illnesses and as time passes, more things occur. I'm at the point where I'm just trying to balance it all. My life has been extremely challenging since my time as a young girl. But I’ve managed to make the best of it. This is a view of my circumstance and life experience. Each person with lupus is different with different experiences.
Living with lupus has been one of the most struggling experiences of my life. I feel as though my life was stolen from me. I battle every day in hopes of one day finding a cure! I used to be so embarrassed about my condition because I felt as though many would judge me or misunderstand me. Now I'm very vocal about it because I know the benefits of raising awareness. I write books to reveal more intimate moments of my life and how I feel in a way of which I'm hoping that I could be of assistance to someone else.
I appreciate you for taking the time to read my story! Check out the rest of the website and contact me for questions, support, feedback or any concerns. Let's stand together and continue to raise awareness Take Care and Stay Blessed!
Motivational Quote
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