Welcome to My Page
My name Toya,
I was born in Cincinnati, Ohio and raised there for a short period of time. I was officially diagnosed with Systemic Lupus Erythematosus in 1995. I was only 9 years old at the time of my diagnosis. Shortly after my diagnosis I moved to California. When I first moved to California my diagnosis was changed to MCTD (mixed connective tissue disease) by my Pediatric Rheumatologist.
Living with lupus has been one of the most difficult experiences of my life. I feel as though my life was stolen from me. I battle every day in hopes of one day finding a cure! I used to be so embarrassed about my condition because I felt as though many would judge me or misunderstand me. Now I'm very vocal about it because I know the benefits of raising awareness. I write books to reveal more intimate moments of my life and how I feel in a way of which I'm hoping that I could be of assistance to someone else. I share authentic emotions. Sometimes I sit back and try to make sense of my purpose. I don’t believe I was put on this Earth just to suffer, although that appears to be what I do most. It’s a battle everyday with myself, against myself. I have absolutely no control over what my body decides it wants to do.
Since my first diagnosis, I have discovered that I have several overlapping illnesses/conditions. They include: the factor V Leiden mutation, pulmonary embolism, ITP (idiopathic thrombocytopenia purpura), anemia, arthritis, immunosupression, subacute cutaneous lupus (Discoid lupus), hypertension, Raynauds phenomenon, membranous lupus nephritis, fibromyalgia, complex migraine which goes hand in hand with the most recent encephalopathy.
As time passes, more things seem to occur or become introduced to me. I'm at the point where I'm just trying to balance it all. My life has been extremely challenging since my time as a young girl. But I’ve managed to make the best of it. This is a view of my circumstance and life experience. Each person with lupus is different with different experiences.
I appreciate you for taking the time to read my story! Check out the rest of the website and contact me for questions, support, feedback or any concerns. Let's stand together and continue to raise awareness Take Care and Stay Blessed!