The reason I write
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I started expressing my thoughts in a journal when I younger. As I grew older I decided to turn my thoughts and feelings into poetry. This is one example of how I vent and how I deal with my illness. Since I can’t fix the issue, I write about it. Writing has become an outlet for me. Although lupus is a daily struggle, I do try to stay happy, stay positive and cope the best way that I am able to. I decided to share my thoughts and feelings publicly because I’d like people to get an understanding of what my life with Lupus is like. Also, to motivate others who are new to lupus and are trying to find way to explain to their loved ones and also cope with this crazy disease.
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What I feel...
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The most challenging part of this illness is being fatigue every day, experiencing pain every day and trying to live as normal as possible every day. It's also very difficult to explain and get people to understand.
I love me so much but I hate living with a chronic illness. It's the most disturbing part of my life. I choose to express my hurt, pain and experiences with lupus through poetry. I wrote a poetry book called, "A Piece of Me". My goal is to provide a better understanding of what I experience on a daily basis through poetry. My words reveal my struggles with this chronic illness. We definitely don't get the recognition that we need. I'm hoping that you are able to share this with others in hopes that they will better understand our experiences. Lupus awareness is so important. This is a very tough life to live and every day I have to fight a MONSTER. People need to know how rough it is so that we can get help. |
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It is so difficult whenever I try to explain my situation. I think Christine Miserandino did it best when she wrote the spoon theory. Please make sure you check it out!
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
My Blessing
My Blessing is my son. He is my strength, my motivation and my miracle child. He is my reason for moving forward. I've also been blessed to have an amazing group of supportive Family and Friends. They've all been a contribution to my strength.
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My Accomplishments
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My Goals
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